A whole lot of doctors, nurses, and others quickly worked on Aubrey to get her temperature, blood sugar, and heart rate back up to a normal place. It was very scary for me and I was SO thankful to have Brian's mom with me. Once they got her to a more stable condition, they took her in for a brain cat scan and then she was placed in the PICU. Brian was able to come back that evening and spend the next three days with me at the hospital. Aubrey was doing much better shortly after getting into the PICU, though she was still very sleepy for the rest of that day. That night was very scary for Brian and I because after Aubrey's dangerously low blood sugar level, it shot up to a dangerously high level. Thankfully her body was able to regulate it over the nighttime so she didn't need any help with that.
While in the PICU, Brian and I were offered a room at the Ronald McDonald House located in the hospital. That was a blessing for us to get to take turns napping and showering there over the night. Aubrey was out of ICU status early wednesday morning, but it wasn't until late that night that there was a room for her on the Cardiac floor. We were so glad to be moved to a much larger room with a place for us to sleep and a private bathroom with a shower. Also they only checked vitals every 4 hours there and Aubrey got to shed most of her cords and stickers and cufs and other tethers. She only had one iv left and since she was feeling better she was happy for the extra mobility.
It was a very difficult time for all of us. Brian and I were very emotionally exhausted from watching Aubrey go through so much poking and prodding. She became VERY fearful of anyone who would walk through the door (besides Mommy, Daddy, Grandma, and Grandpa.) It hurt me so much to see her hurting and afraid and not be able to do anything but be there for her.
The doctors are still baffled by what actually caused this incident. We have talked to lots and lots of doctors. We are thankful to be in such place with such WONDERFUL doctors. There are so many doctors reviewing her case and trying to find answers. She had lots of blood tests, eye exam, hearing exam, liver ultrasound, heart ultrasound and so far everything has turned up normal. The cardiologists and the geneticists want her to have a few more tests to try and narrow down a diagnosis (or rule out certain other conditions.) We have to take her back to TCH on Thursday for a big brain MRI and they are doing a skin biopsy while she is under anesthesia. They finally let us go home Friday night. She has been SO happy since we left. She is completely back to her normal bubbly, loving, smart, silly self.
Thank you for keeping us in your prayers. Though it has been a difficult time, we have many things to be thankful. We need prayer for wisdom and peace as parents. We pray that Aubrey has peace and feels safe despite all the uncomfortable appointments she has to go through. And of course we pray for healing. We would like some answers, but we are okay without answers. We need your prayers of protection: physical, emotional, and spiritual. God is good.
5 comments:
I'm so glad you are all home and that Aubrey is back to her normal self. I am praying for you, precious Buck family.
Much love,
Becky
Thanks for the update...we were so glad to hear she went home last week and is doing well! It sounds like we need to keep praying for answers...I wish I could have been there!! I'm so glad Brian's parents are close by. I'll call soon!
Cori
Thank you for the update. We did not know what was going on. We will definitely be praying for you all!
Love you guys!
Will be praying for you three and A's doctors.
Oh julie I also sorry I justresd this today and had no idea! God is working in you and your family mightily! Do glad she is back to normal please keep me posted on what the dogs come up with and if you ever are in Bartlesville with brian please make sure to let us know I would love to see you
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