Spring Time

Life is good.  We are enjoying long days and warmer weather.  Aubrey and I try and get out each day for a jog, walk or bike ride as long as the weather holds.  There are finally buds on the trees and even little bits of green grass here and there.  Aubrey is on the verge of crawling--she gets up on her hands and knees and rocks and occasionally takes a step or two forward.  She can now scoot on her belly towards whatever she wants (usually a phone or paper.)  If we hold her hands she loves to walk around the room.  Her steps are huge for such tiny legs and very deliberate.  Brian and I are both enjoying her so much these days.  

Brian wants me to mention a little "incident" we had last week.  We paged the cardiologist because we thought Aubrey had a seizure or something.  What happened was that we were playing and I laid her on the floor next to Brian.  All of a sudden, she started flailing her arms and legs and shaking her head back and forth for a couple of seconds.  I scooped her up and all of a sudden a bunch of yellow snot came out her nostrils.  Apparently what happened was that the snot completely plugged her nose for a moment (babies can't breathe through their mouths.)  It scared us all.  

Brian and I are having our hearts echoed on Thursday to see if either of us has HCM.  We won't find out the results until Monday when we talk to the cardiologist.  Aubrey's next appointment is later this month in Alaska.  The cardiologist here will echo her heart.  June 23 and 24 we have appointments back at Texas Children's.  We have just connected with a family in Texas whose son has a similar diagnosis.  We are really looking forward to learning more from them and having a connection with someone who can really relate to what we are facing.