Day 1 at Mayo

We made it to Rochester. We stayed at a dear friend's house last night and drove down early this morning. By 11am, Zoe has had three appointments and Aubrey just went back for her first, an MRI. She didn't seem too nervous, just tired and hungry. She wasn't allowed to eat until after this test. 

We are third on the wait list to get into the Ronald McDonald house and are likely to get a room today. Aubrey has appointments scheduled all over the place here today. It is a little overwhelming, but this place seems to run like a very well oiled machine and there are always friendly people to ask for directions. 

10:45pm

Just climbing into bed after a looooong day!  We had a packed itenerary today with appointment after appointment including a sedated MRI and echocardiogram for Aubrey. Brian and I had to split up several times, eat on the run, and we still had to skip 3 of the appointments. We were the LAST appointment with the cardiologist. He spent a couple hours with us talking and answering all of our questions. When we got done the hospital was virtually empty! 

We went straight to the Ronald McDonald House where we get to stay for the whole trip. This place is wonderful and so welcoming. We got checked in, had a tour and then ordered pizza. 

Aubrey was amazing. She was such a trooper. She didn't get to eat anything until about 1:30. She had anesthesia in the morning making her sleepy most of the day and had lots of various types of stickers stuck all over her for tests throughout the day. She did everything without complaining or arguing. We were so proud of her. 

We all need some good sleep tonight. Tomorrow we have several more appointments and Thursday is surgery day. Thank you for all your prayers.